I am getting engaged! No, I do not await a big rock, or a swooning fiancé. I did that 34 years ago.
I am getting engaged with my readers.
With you, dear readers. Today I hope to tell you more about myself.
I am a sincere person, and I have learned a lot in these almost sixty years of precious life. I have an authentic, eclectic style, but I wonder if the wide breath of all of my looks confuses you. One day I am wearing a ball cap with distressed jeans, donning my favorite hair style- a ponytail. Cue the next photo I am wearing this ladylike dress and wearing a prim top knot.
Which is me? ALL ARE ME. I am a complex layered onion of a person. However, I doubt that most of my readers know me well. Some do, and I am grateful for all of you. For those that do not, let me help introduce myself. Getting engaged with my readers and staying engaged is important to me.
I am from the midwest from a large family. I have a twin! I was a sick child and have grown into a happy women, but one who carries a burden like everyone else. My burden is my rare disease called relapsing polychondritis. Read MY POST here about it. To sum it up, my condition is rather serious and I turned to blogging to help “picture myself well”. I was spending a lot of time helping other patients online and my identity was too tied up in my disease. It is ironic that I look so well and I work hard to present myself as well and thriving, and In most ways I am. My disease is under control, but the medications are tough ones, including corticosteroids, not the kind that athletes take, but one that causes all of the symptoms of aging. I also take a chemotherapeutic drug. I am partially deaf, have eye problems, have airway issues and am at risk for, shall I say this? Gulp. Yes. My risks are fatally suffocating as my airways has lesions that weaken it so that it can collapse. Blindness is a risk, which is what happened to my mother due to her similar autoimmune disease, as they are heart and kidney issues.
But this is not a pity party. I am pretty well-controlled with medications, hopeful outlooks and lifestyle habits that work well for me. I eat organic, Non-GMO food when possible, NO SUGAR, no alcohol, and lots of greens. I walk everyday briskly for 40 minutes to an hour. I am faring quite well compared to most with my disease and my level of multi-system involvement.
We all face burdens, so I am not being glib when I say I am just like anyone else. We all face the prospect of death from the moment of birth.
NOW YOU WANT TO KNOW, I KNOW YOU DO! DO I LOOK LIKE THIS IS REAL LIFE? THE ANSWER IS YES, IF I HAVE MY MAKE UP ON, AND AM IN AN IDEAL LIGHT AND AM STANDING VERY TALL. LOTS OF IFS THERE, RIGHT?
I DO EDIT! I EDIT WITH SNAPSEED AND USE LIGHT LEAKS TO ADD INTEREST AND MAKE MY CAMERA PHONE PHOTOS LOOK MORE PROFESSIONAL.
I do look young enough in real life that doctors have screamed at their medical assistant for taking the wrong history, as my birthdate is “obviously wrong.” Then I correct my doctor, that it was correct, and he scooched up to my face on his rusty roller chair and stared at my face. Remarkable, he exclaimed, and the he caught himself. Medically speaking, he amended, this is medically remarkable.
Skin Care? Maybe another post about this separately, but let me just say that my sweet father died at 88 without a wrinkle of his face. And I am blessed with good genetics. I also avoid the sun and use good sunscreen year round, if I am going to be outside for any length of time. I do use some products that help too, but there may be a conflict in my sharing these products as my daughter is, proudly, I gush, rather a big wig at a well known skincare company. But suffice it to say that a rough washcloth was my skincare tool for most of my life, as it exfoliates and helps with circulation. I used inexpensive moisturizers for most of my life, Ponds was a favorite.
Also I do not wash my face, unless I am wearing make-up! I wait until my shower and let my baby shampoo wash over my face. A gentle cleanser free of parabens is what I use to wash off makeup. Washing one’s face too often, I suspect contributes to dry skin and strips it of natural oils.
I was much thinner 3 years ago, and 12 pounds lighter, too. I was actually a bit underweight , and that helps me look young. Now I am at a normal weight. I started blogging looking like a pixie, a slight wisp of a thing. This is a professional photo, and my photographer had a gadget that diffused the light , and the result was good! My waist is several inches bigger now, but still small. My thighs however!
ANOTHER THING TO KNOW. I have THIN SKIN! Literally from the steroid use, and figuratively as it describes my “NICE ADDICT” personality. The idea that I would offend anyone at anytime for any reason, can set me in a tailspin of self doubt. I even apologize to inanimate objects! Not my best trait.
I love animals, and have had three dogs, that last of whom died recently. I miss her very much. Her name was Lucy was she was a great soul . YOU can read more HERE about my lovely sweet furry friend. I have two adult children who are thriving in this world and that makes my heart sing. My hubby of 34 years also adds so much joy to my life.
I am a people person and am fairly outgoing. I talk to strangers, especially elderly people who i suspect did not get their recommended dose of social interaction. I dislike the current I am on my phone don’t talk to me affect that I see much too often. I firmly believe we should be present in our lives.
I worry about the course of technology and am fearful of cyberattacks. My site was down yesterday, it was a WordPress issue, and was resolved in 6 hours, but I can’t shake the feeling that something troubling happened. I use an app to get help for tech issues, and have had good success with them. Yesterday , however, I was contacted by them alerting me to a security breach. My email platform is is the news, as well.
My blog is truly a form of self expression that I find therapeutic . I love to reinforce the idea of slow fashion and shopping small.
This makes me truly consider shutting down Instagram, and being more offline. How do you cope with these fears of online security? I am rarely on Facebook . I try to buy things on the phone rather than online. I change my passwords regularly. Do you also share these concerns ?
For pleasure, I listen to Audiobooks and watch television with hubby after work. Our favorite shows are Billions, The Good Doctor, House of Cards, and much of HGTV, especially Fixer Upper, and House Hunters. I have not watched This is US, but look forward to that!
I was recently featured in a new and excellent blog called Forever51blog.com. This is an excellent site that warmly examines what “OVER_FIFTY” fashion looks like. It is the creation of five outstanding women who write exceeding well. The post does an excellent job at summing up my blog ethos . Please check it out, you will be glad you did.
Pet peeves are an issue I want to close with as surly as that sounds. I am growing quite frustrated with the hashtag age is just a number. While it is true, it connotes a negative, and I would like to assert that age is a privilege, the sum of milestones that make us wiser and more sensitive. True, we have more health problems and more pronounced laugh lines, but that is because we have been laughing for a good long time! Age is a number and a truly vital one.
Age is a number with import, substance and meaning and it can equate to a life that is well lived and an ongoing process of being self-aware. I myself, look forward to adding on gobs and gobs of them, should I be so lucky!
Below some shots from my LookBook that illustrates my eclectic and ever evolving wardrobe looks. I am a work in progress, just like you. Getting engaged with my readers means sharing thoughts and photos.
So do you feel like you know me a bit better? Please feel free to ask me questions, I am an open book, if a long one! SO many chapters! I hope I succeeded in getting engaged with you, or re- engaging with you, as the case may be. I will not write many personal posts such as this often, although I do love to write and share. I am just worried about over-sharing at this particular time in this modern world. I hope you understand.
I am going to be updating my theme, so please bear with me if you hop on the site and things are under construction, in the next week or two.
I wish you well my blog friends ! Truly, and sincerely ! XOXO Elle
What a great post to get to know you Elle. Because it’s true that we only get a small tidbit with the blog and IG otherwise. I remember the first time you told me your age and I was astounded. Although it does remind me of a patient I had that had been on steroids for years due to some illness…..and she had nary a wrinkle either.
You are truly a fabulous example that we should never judge a book by it’s cover.
To a fabulous and beautiful you, Elle!! Thanks so much for sharing….
XOXO
Jodie
http://www.jtouchofstyle.com
I am glad you mentioned the steroids. It does pump up my face and that probably helps hide some wrinkles. Thank you so much for your kind words as always.
❤️ Elle
How great it is to get to know you a bit better. I knew you were also seriously ill. It changed me, did it with you? I love it when bloggers tell something more personal things. I’m glad you are a positive person because it is hard work to be ill. Thank you for this beautiful post!
Illness changes a person for sure. But as I said I was sick child and I was also quite sick periodically growing up, and in early adulthood is well. I was homeschooled for six months because I was too ill to go to school. I just was not diagnosed correctly until about 10 years ago. So I guess my changes were gradual, insidious and ultimately constructive. I have a wonderful family and social life and I am sure that has helped me along the way. I am not sure what your diagnosis is when you get a chance could you… Read more »
You are beautiful inside and out, my longtime friend. Lovelovelove this post! 😘
I attribute my happiness and relative good health directly to my relationship with my friends and family. Proudly , you are one of those beloved souls,
❤️Elle
Interesting personal post! I have so much admiration for women like you that can soldier on despite all the heath issues and keep a positive attitude. I’m curious as to your no sugar diet. Is that all sugar including fruit, starches grains etc? I’ve been told that type of no sugar diet is good for my disease as well. It seemed like a very difficult task to give up all of that and still manage to live like a normal person. I already don’t eat meat, dairy, fish or bread but giving up my oatmeal in the morning (unsweetened homemade… Read more »
Well, your diet sounds much more restrictive than mine and I am super impressed that you are so disciplined. I eat two slices of Ezekiel bread a day which is sprouted and has a lot of fiber in it so the starch is digested in a way that is healthy. I don’t eat fruit. I do eat a little bit of cheese and mostly dark meat chicken and salmon , along with nuts and seeds. I do eat meat because I have a history of profound anemia . The only thing I miss is my single glass of white wine… Read more »
I knew some of these things, but much here is new to me about you, Elle. I find myself thinking that we are much alike in our attitudes on some things, including, “Yes, I really dress like this!” to our thoughts on aging. I think we would get along well in real life. Thank you for this lovely post, and little glimpse into the real you. Aside from my blog, I have very little presence online – I don’t Facebook, don’t have a phone, none of it. I find that my life is better with less of that (and yes,… Read more »
Yes I always get the sense when I read your post that we would be friends in real life. It is so much fun to dress up it is a way to celebrate each day. I think we both agree with that promise.
I am really impressed that you don’t have a cell phone. That is amazing. I am inspired by you for so many reasons and that is just the newest one. Thank you so much for your kind response.
❤️ Elle
What a brave and beautiful way to deal with your illness. I am truly moved It’s hard to imagine looking at you that you have health issues that are potentially life-threatening. I appreciate all this information that you share and love getting to know more layers ..You bring so much honesty creativity & courage to each of your posts. Your writing and your photography are beautiful like you. Thank you for sharing. It’s great you are surrounded by friends and family and it’s obvious that anyone around you would be moved in a positive way. And I also love that… Read more »
Thanks so much for this lovely comment. I so agree with you. We must focus on the positive and there is quite a lot of it!
❤️ Elle
Is okay to have different style I call it Fashion keeping everyone on the edge not knowing what is next. I have a great grandma when she pass on every one who came to the funeral could not believe she was 95 years old she always look flawless till this day no one knew what she did to keep her skin on point. I hope I have her genes.
I like how you described that fashion style. Yes, like your grandmother, there is probably a good genetic component, It looks from your photos that you have it too!
❤️ Elle
It was so nice to read more about you – and it’s so true. We have our blogs and social media but so much of our lives is still hidden, we don’t share everything online. Health issues aren’t always spoken about so it’s good you have been able to get yours under control and relatively well managed! I like your eclectic style too, you always put together such great outfits every post 🙂 Hope you have had a great week so far and you have a lovely weekend ahead of you! It’s been a bit cooler and rainy this week… Read more »
Thanks so much MIca!
Yes health is really discussed unless it is a different sort of love. But since it is such a fundamental part of who I am, I thought I would share it today. Thank you for listening and commenting so kindly. I’m happy for you that autumn is on its way !!
❤️ Elle
Dear Elle, thanks a lot for this post! I knew already that you are a wonderful woman with a bright heart – a beautiful one. It is very impressing how you deal with your illness and I think you are a true role model in this context. It is also so exemplary that you speak with strangers, especially with older people as you are for sure right with your assumption that they may have often less social contacts. Corresponing the security of Internet & Co honestly I’m not really in sorrow. Sometimes things happen that we can’t steer and therefore… Read more »
Dear Rena ,
That is a very lovely comment and I appreciate your kind words. I do consider myself lucky first and foremost. You were right to advise not to worry about things we cannot control. But I do feel like I need to exercise some caution when I can. Have a beautiful weekend !
❤️
Elle
It’s wonderful to get to know you a little better! I didn’t know that you are from the Midwest. May I ask from where – state or town? Only if you’re comfortable to share, of course. I spent a few years living and traveling all over Midwest and I think I imagine the life there pretty well, but of course each place has its own specifics. I can say that when we moved out here, it almost felt like another immigration to me! It’s that different. I would also love to know your story moving to NYC, your love story… Read more »
Natalia, it is certainly no surprise that we block for similar reasons. It is a funny coincidence as our styles are so much alike as well. I grew up in in Columbus Ohio suburb. When I was young my father would travel to New York often and I knew that is where I wanted to be when I was an adult. I love the pace of Instagram since I am a bit on the energetic side these days. But I also love the ability to have a more personal platform with the blog. It is time-consuming to do both, I… Read more »
Thank you for your reply, Elle! To say that our styles are similar is a HUGE compliment to me! You are incredibly talented.
I used to live in Cincinnati, OH and visited Columbus a few times. It’s fun to know that you grew up there!
Cincinnati is also a wonderful city and I used to travel there often. The Midwest is charming. I actually think the reverse is true. Been compared to you is a wonderful complement. I do think our styles are very similar. Perhaps because we are so creative? Have a wonderful week ahead.
❤️ Elle
Great post, Elle. It’s nice to learn more about you. Your comments on aging stand out to me because I share a concern about that issue. Also of interest is your observation that sometimes we look better on our blogs than we do in real life. I feel that’s true for me. Good move for you to open up to us with this post.
I am so glad you like this post Ally. I do try to look my best possible, but in one post, I did show a photo of me without makeup and poor indoor light, bundled up and feeling unwell. It is good for reference. Like all things, I try to put my best foot- read shoes – and the larger figurative meaning- forward.
❤️
Elle
There is a lot I already know about you as I have been following your blog for a long time now. And a few new things. I can see why we like each other, there are lots of similarities between us.
Greetje
Thank you Greetje,
I agree, we have similar personalities and perspectives.
I think we would have great fun together in real life, too,
❤️
Elle
Wow! I had no idea! I always admired your beautiful skin and how amazing you look, but I had no idea about the illness. Can I ask if that makes you look young? I too have illness and I have Ehlers Danlos Syndrome, which makes me look young (even though I’m 30) but it’s really nice to get to know you. I love animals too! I have cats xx.
Raindrops of Sapphire
Lorna, I had no idea you had EDS. One of my docs thinks that maybe an associated diagnosis for me due to hyper mobility. That can be rough. Do you read elegantly dressed and stylish, by Jess? You should if you do not. Maybe I should test for it.. I did not know that it is associated with a youthful appearance. Or maybe I will chalk it up to good genes… or maybe not ! No, my disease tends to age and damage organs, and prednisone thins my skin, but perhaps the plumpness to my face smooths a bit. Thanks… Read more »
Oh no I haven’t read her blog, I will go and check it out now, thank you for that! Sorry to hear that yours damages your organs, that’s awful. You’re such a lovely person xx.
Thank you for the shoutout to our blog Forever51, but more importantly thank you for sharing more of yourself! I am turning 55 in September and I agree with you 100 percent that aging is a privilege! My parents are 80 and 76 and they have taught me the importance of gratitude and attitude! I look forward to the day when I am a great old dame! Keep sharing Elle you are an inspiration!
Tammy, it was my pleasure to mention your excellent blog, I am so glad we agree that aging is a positive thing, I am also happy for you that both of your parents are alive.
Love that expression, beats the *ell out of the term old lady,
Hugs and sincere thanks.
❤️
Elle
This is a fantastic post, I love your way of writing. Beautiful person inside and out!
Xoxo,Khloe
http://khloelocom.weburl.ro/10-things-make-smile/
Thanks Khloe,
What a kind response, I do love to write, but understand most readers have little time for reading,
Happy new week.
❤️ Elle
First of all you are so unbelievably pretty! I appreciate your fashion sense and writing style. A dermatologist I met swore by layering oil over moisturizer for soothing and strengthening thinning skin.
Hi Elle, I was lucky enough to meet you a couple of years ago and I can definitely say you are beautiful both inside and out…photographs don’t do you justice. Add to that, you are an amazing person! You are so positive and a real inspiration, with all that you go through.
Dear Elle, I do hope we meet someday. I find we are similar in many ways. Your writing was very eloquent here. I look to you as an inspiring lady, as we both know how challenging it can be living with a serious disease. We both seem to have it managed, and live day to day with appreciation for life. Thank you for sharing more. I understand the ability of talking to people, as I too, think I got that trait from my mom. i eat a healthy diet with lots of proteins and vegetables too, but I do enjoy… Read more »
It’s very brave to post such personal stuff but I relish your openness and sincerity. Too many blogs are about ‘my perfect life’ but I am only interested in people who come over as real. I completely agree with your comments on age – we should be glad that we are still here and enjoying life. Ageing just means that we are lucky! Also, I am fascinated by your eclectic wardrobe – that is certainly my favourite kind x